HORIZONS A Newsletter for Families and Friends of Crotched Mountain Spring 2004 Volume 4 No. 2 Gentle Teaching, an Approach to Learning Where the Process is More Important Than the Outcome Twenty or more students in rows or a circle of desks can create too many distractions and too much stimulation for some children with disabilities. Struggling to focus, learn or even participate socially, they experience frustration. No matter how inclusive the curriculum, some ultimately will be labeled with behavior challenges. These are the children who will be referred and are enrolled at Crotched Mountain. To address these learning disabilities Crotched Mountain is implementing a new teaching method called Gentle Teaching. Introduced to Crotched Mountain by special educator Dan Hobbs from Nebraska and Crotched Mountain’s behavior and education specialist Jan Holland, Gentle Teaching looks beyond behavior to the whole person, improving communication, determining what the person is trying to say, and defining clearly what the person needs in order to participate. Hobbs has taught extensively throughout the US, Canada and Europe, exploring and encouraging positive approaches to behavior challenges. Jan Holland is heading the new Crotched Mountain Center of Excellence focused on positive behaviors. By offering more choices and changing the approach to best fit the person, Gentle Teaching addresses the frustration that often precipitates behavior outbursts, increasing opportunities for education, socialization and participation. Jan Holland observes daily that the use of Gentle Teaching is making dramatic differences for students who, in other circumstances, could become disruptive, uncommunicative and even combative. “It’s a very common sense approach,” says Holland. “If standing next to a person who is eating causes them to exhibit disturbing behavior, try sitting with them. Better yet, try eating with them!” Teams of teachers, therapists and residential specialists work together with individual students to create a process that supports each student’s well being. Since all behavior is a form of communication, the team works to understand each behavior so that disruption can be avoided, making it possible for the student to focus, learn and connect with classmates and teachers. Once a week, each team including their student member, is videotaped and the tapes are analyzed immediately after class. The process looks at everyone’s communication – teachers, aides, therapists, and students – considering tone of voice, choice of words, body language and facial expressions. The goal is to adapt teaching methods to students’ individual learning and participation styles, creating sustainable and fair teacher-student dialogues. Formats are developed for helping children who easily lose control to stay in control. They rehearse the format over and over so that in an “emergency” the child will revert to the format, just like a fire drill. At the heart of Gentle Teaching is relationship building. “All of us thrive on relationships,” according to Hobbs who explains that activity for its own sake is meaningless, but shared with someone else, it becomes fun. “Relationships carry people through,” he emphasizes. “Successful teachers connect.” Teachers report that Gentle Teaching has made remarkable differences in individual students’ abilities to concentrate and interact. Parents also see differences. “Gentle Teaching is real-life based. Everything for [my son] needs to be purposeful and have meaning. With this element, he is able to make sense of the world around him," wrote one mother. “I have great respect for [my son’s] team. I thank everyone at Crotched Mountain for investing in his life and future outcome. ”Perhaps the most important aspect of Gentle Teaching is that it enables us “to see ourselves as others see us,” observes teacher Mark Tanner, “and with that insight, to change what we do and how we do it to be more effective." Crotched Mountain Forms Center of Excellence in Positive Behaviors Supports for People with Disabilities The recently approved strategic plan for Crotched Mountain set as a priority the development of several “Centers of Excellence.” These centers will focus on meeting the most challenging needs in our mission of service. They will also allow us to build on our strengths in new, flexible, and innovative ways. The Center for Positive Behavior Supports for People with Disabilities is the first center we have initiated. Under the leadership of Jan Holland, our goal is for this center to influence practices and methods not only at Crotched Mountain, but also in the broader community of professionals and families. In addition to the ongoing implementation of Gentle Teaching techniques at Crotched Mountain, it is sponsoring a seminar led by Dr. Steven Gutstein, co-director of the Connections Center in Houston, Texas, on the topic, “Solving the Relationship Puzzle: Opening Doors to Friendship for People on the Autistic Spectrum” on Sept. 17 & 18. For more information, contact Linda Hughes at 603-547-3311, ext. 598. The Next 50 Years From the President Last year, when we reached the 50th anniversary of Crotched Mountain’s founding, we held many celebrations, reunions and events that publicly called attention to the achievements of this remarkable organization. But behind the scenes, many people were working hard on a project that will provide a guide for us as we start our journey over the next 50 years — the development of a Strategic Plan for Crotched Mountain. The Strategic Plan, which was completed earlier this year, is the work of many people, who came together from inside and outside Crotched Mountain, in small groups and as a community, to converse, dream, appraise, focus, envision and plan. The plan we created describes an exciting vision for Crotched Mountain — to build a community of mutual support. It also maps the activities and investments in our staff, programs and campus that will give us the best chance to achieve the goals we identified. In my letter in this issue of Horizons, I would like to tell you a little bit about this plan and our dreams for Crotched Mountain. We began by seeking the participation of many people who make up the Crotched Mountain family — staff at all levels, directors and trustees, parents, students and clients, community members and others who work on behalf of people with disabilities. Their active participation in numerous meetings over many months was crucial to the development of the strategic plan. We thank all who shared in the process. We identified what Crotched Mountain does well and our strengths as an organization. We agreed that our underlying strength is a profound commitment to our mission of service to people with disabilities, especially those with profound challenges. With a full-time staff of 700, of which 75% provide direct care to over 2,000 people annually, Crotched Mountain makes a significant contribution to the well being of vulnerable populations in New Hampshire and New England. We found that the power of our clinical rehabilitation and education has few parallels. We were impressed with the universal observation that caring and warmth are found everywhere at Crotched Mountain. Our programs are able to accept ever more medically challenging patients and residents. The location of Crotched Mountain on a beautiful mountain that has been well protected is also a significant strength. But we are not without challenges: staff shortages in key health and therapy occupations; emerging populations with unmet needs; difficult transitions for people with disabilities throughout their lifetimes; service systems that often ignore the need for stability and relationships; campus buildings and infrastructure that do not meet the service needs of today and limit our ability to achieve our goals for tomorrow. The plan we developed identifies goals in our health, education and residential services programs that emphasize our continuing commitment to quality and serving those most in need. In addition, we have established a goal to build what we are calling “communities of mutual support” that address the needs of people over a lifetime. These communities will be a physical place — where people live and receive state-of-the-art education, therapies, and rehabilitation — and they will also foster the building of relationships. To achieve these communities, the plan calls for significant investments in the Greenfield campus a new school, new housing for residents and staff, and improvements to roadways, water, energy and other infrastructure. We also want to preserve and sustain the beautiful mountain environment and create more opportunities for accessible recreation. The Board of Directors and staff are committed to this vision and strategic initiatives described in this plan. To achieve the goals of the plan will require significant investments in our campus and in our programs and staff. As we have for 50 years, we will turn to the individuals, groups and organizations that have sustained Crotched Mountain to help us reach this next level. We are confident that together we will succeed in making this vision a reality. I would be pleased to provide you with a copy of the Strategic Plan and I welcome your thoughts about our future. Donald L. Shumway President and CEO Crotched Mountain Board of Trustees Welcomes New Members Stephen R. Bates “I am very pleased to be a member of the Board of Trustees and a part of the Crotched Mountain family,” said Stephen R. Bates of Centerville, MA. “The Board of Directors and management have put together a wonderful vision and road map for the future of Crotched Mountain and I look forward to helping make that vision become a reality,” Bates continues. Bates and his wife Gretchen are the parents of a Crotched Mountain student and are frequent visitors to the Greenfield campus. A graduate of Babson College, Bates has worked in the finance management area of cable manufacturing and commercial lending. He is president of Global Interconnect, Inc., Pocasset, MA, a company he founded in 1996. Global Interconnect manufactures custom molded cable assemblies, pc boards, fiber optics, electromechanical sub-assemblies and high speed assemblies for the medical, computer and industrial markets. The Bates and two additional children, Joshua and Charlotte, reside in Centerville, MA where they enjoy boating and fishing in the summers and skiing in Vermont during the winter months. Howard O. Stoner Howard O. Stoner of Sudbury, MA, joins the Crotched Mountain Board of Trustees with the personal goal of making Crotched Mountain’s Strategic Plan for community living a reality. The father of a student who has resided at Crotched Mountain for 11 of his 18 years, Stoner speaks also for his wife, Carol, when he says, “We unreservedly believe in Crotched Mountain School." "In eleven years,” Stoner continues, “We have been consistently happy with Crotched Mountain and most importantly, our son John is happy.” Stoner is President and CEO of Stoner and Company, a national network of salvors and appraisers, with offices at 10 locations across the country and headquarters in Sudbury, MA. A graduate of the University of St.Thomas in St. Paul, Minnesota, Stoner has worked in the commercial/industrial insurance and recovery field for 29 years, 23 of them in the company he founded. His wife, Carol, is CFO of Stoner and Company. Stoner and Company serves large retailing distributors and manufacturing corporations, specializing in the salvage, inventory, appraisal and liquidation of losses. The Stoners reside in Sudbury, MA. In addition to John, they have a daughter, Allison, two sons, Brendon and Dax and three grandchildren. Editor’s Note: We are delighted to share these letters from the families and friends of Crotched Mountain who write from the heart about their experiences here.. Mr. Redmond: Do you remember Camp Union? I spent a few weeks there every summer in the late 1950s. Each year, on a Saturday morning, the camp would open its doors to the kids from Crotched Mountain. They were different from the rest of us – most physically disabled, some barely able to talk. But through the exposure provided by the camp, we came to the realization that they weren’t really different at all – they had the same spirit as we did, just faced a different sort of challenge. These are warm memories for me, memories that helped shape my views of the world at the tender age of 10. With admiration for the work you do,LS Dear Dr. Cooley: When we asked our daughter what she thinks about the people at Crotched Mountain, she said that they give her strength and self confidence so that she is sure she can accomplish everything. We agree with her. From our very first visit, you put your arms around us and you now have a place in our hearts. We feel that you have given us a lesson about life. For our daughter, that is very important for her future, since it has to do with her physical and psychological development and health. For us it’s a reassurance that science and human feelings go together and you have proven that to us. It’s very difficult to put feelings into words. It’s too little to just say “thank you” but we think that the best reward for all of you and us as well is to see our daughter’s smile become bigger and bigger. We would like to thank you, Dr. Cooley, for what is reflected on our daughter’s face. We thank Lyn because our daughter can now swim by herself. And we thank Peter, Kevin, Jeff and Liz and all the other persons we haven’t met but we know are there. We wish you all the best, The parents of a Crotched Mountain student Patrick’s Story Eleven-year-old Patrick came to Crotched Mountain as a day student three years ago with extreme behavioral challenges. He resisted all involvement – social, academic and athletic. Transition from one activity to another was especially upsetting to him. When asked a yes/no question, he always answered “no.” Patrick was taking medication to reduce undesired behaviors. He had great difficulty understanding that each activity has a beginning, a middle, and an end. He never smiled and was anxious all the time. He wanted to be in control but he didn’t seem to know how and caregivers were not sure how to let him. In his weekly occupational therapy sessions, Patrick was “all over the place,” according to team member Stacy Eberhardt. Since Patrick’s team began using the Gentle Teaching approach, Patrick has responded by being able to concentrate on developing his sensory/motor skills. His behavior medications were gradually reduced and then eliminated. “And sometimes, for 30 seconds, he’s just a little boy. A very engaging little boy,” smiles Mary Griffin, a school psychologist who works as part of Patrick’s team. “We changed our approach, and that has helped Patrick adjust his behavior,” both therapists agree. By watching videotapes of their interaction with Patrick, Stacy and Mary see that he responds to visual cues more positively than verbal cues. Instead of yes/no questions, they make statements. “We’re going to motor circuit now, do you want to walk or ride your bike?” This provides a structure, within which Patrick can make choices. The team, including his one-to-one residential aide, praises Patrick for even partial participation. And gradually he is learning about choice making, turn taking and coordinating his body. He’s more playful and less anxious now. While Patrick still struggles between engagement and resistance, his participation has increased. He is able now to enjoy his swimming sessions, and he joins in when his class is singing. These are huge steps. “I feel I’m a better therapist,” says Stacy. “When I am struggling with a student, I realize now that I am the one who has to change." “If a student is not meeting expectations,” says Mary, “it means he needs more support and more encouragement.” In the past, students were rewarded only if they met expectations. “But now we realize that affirmation is part of a step-by-step process, and we acknowledge each step.” Now a resident of Crotched Mountain, Patrick is calmer and happier. He can focus better on individual tasks. He gives and gets hugs. Because he is offered choices, he feels more in control, and that translates into being in control of himself. "When you see this kind of positive reaction, you just love your work!" Stacy smiles. “It energizes you.” Stacy, Mary and Patrick are all in a better place because of what they’re learning from Gentle Teaching. Project Linus Blankets the Mountain by Lisa Moran, Manager of Volunteer Services On a chilly day in early spring, Persephone “Percy” Agrafiotis from the New Hampshire Chapter of Project Linus brought a little warmth and a lot of smiles to the students of Crotched Mountain in the form of blankets, afghans, and quilts. Time and materials were donated to provide children with the gift of new, homemade, washable blankets, lovingly created by Project Linus volunteers called “blanketeers.” Project Linus was born in 1997 when Karen Loucks began providing blankets to young patients at the Rocky Mountain Children’s Cancer Center in Denver, Colorado. The child who inspired this project said her “security” blanket helped her get through chemotherapy treatments. Since then, Project Linus has delivered blankets to children all over the world. The children of Crotched Mountain enjoyed receiving a blanket because it’s special and it’s theirs. Jenelle Callahan from Residential Services stated that the reactions of the more than 50 students who received blankets were priceless. “I cannot remember anything else touching and impressing our students as much as those blankets. One student LOVES his new blanket so much, he went home, wrapped himself in it and fell asleep.” Project Linus is a 100% volunteer non-profit organization. Volunteers make the blankets and donate gift certificates for new blanket materials and office supplies to operate the chapter. For more information contact Lisa Moran, volunteer services at ext.410 Boot Scootin’ Boomers Bring Fun, Entertainment and Support to CMF Since 1999, more than $46,000 has been contributed to Crotched Mountain by a unique musical group known as the Boot Scootin’ Boomers. The group made their annual visit to Crotched Mountain recently to perform for students, residents and staff and to present a check for $12,900. “We just like to make people happy and help out children in need,” said Phil Catudal, who with his wife, Elyce, leads the dozen or more civic-minded, fun-loving volunteers from Manchester, Goffstown and surrounding towns. The Boot Scootin’ Boomers perform nearly every week at schools, churches, and retirement homes, as well as in parades and festivals. They are a popular attraction as they always invite their audiences to try out the “boombah,” an original percussion instrument that is part cymbal, part tambourine and part pogo stick, trimmed with a bicycle horn and jingle bells. “The Boot Scootin’ Boomers are terrific,” noted Michael Redmond, Vice President for Advancement for Crotched Mountain, when presented with the check. “Not only are they generous donors, they are true ambassadors of our organization. With every performance they increase the community’s understanding of what we do and how we help children and adults with disabilities.” Taking the Plunge Raises over $4,000 On a cold and windy February day, Crotched Mountain staff, a student and a parent braved the icy Atlantic to make the annual Penquin Plunge in support of Special Olympics. “I can’t even begin to explain,” said Geoff Garfinkle, director of therapeutic recreation, “but felt like it was some NASA test for an astronaut to see how much the body can take.” Every year, Crotched Mountain students compete in the summer and winter games, always bringing home medals. Matt Savage Trio Performance Internationally-Acclaimed Eleven-Year Old Jazz Pianist and Autistic Savant Has Charmed Audiences from New Orleans to New Zealand In recognition of National Autism Month, Crotched Mountain Foundation featured the celebrated Matt Savage Trio in concert on Sunday, April 25. New Hampshire resident Matt Savage, one of the world's foremost young jazz piano players, has shared the stage with names like Dave Brubeck, Chick Corea and Bobby Watson. Matt, who is now eleven, was born with a form of autism, a disability that affects social interaction and communication. Ten percent of people diagnosed with autism also manifest amazing abilities such as prodigious memories and advanced math skills. At age six, as the result of an acute sensitivity to loud noises, Matt was introduced to the piano as part of his therapy and "Everything just snowballed," says his mother, Diane. His playing is "something very atypical, something an autistic child normally can't do," she continues. "But then we've never dwelled on what people can't do, it's all about what you can do." Matt began studying at the New England Conservatory in 1999 as a classical student and played his first concert two years later. The Matt Savage Trio has released three CD's of his original compositions. Robin Connell Named Senior Development Officer at Crotched Mountain Foundation Robin Connell of Merrimack, NH, has recently joined the Advancement Department of Crotched Mountain Foundation. As senior development officer, she will be cultivating relationships with existing and prospective donors. Previously, she was employed as a financial advisor for UBS Financial Services, CIBC Oppenheimer, and Fidelity Investments where she counseled corporations and high net worth individuals to develop effective investment strategies. In the process, she earned her registered investment brokerage licenses (series 7, 63, 65 and 66 certifications). Connell is a 2002 cum laude graduate of the University of New Hampshire where she received a bachelor of arts in English. “We are delighted to welcome Robin to Crotched Mountain,” remarks Michael Redmond, vice president foradvancement. “Her expertise as a financial advisor complements her personal commitment to serving the needs of individuals with disabilities and their families.” Connell is the founder of Merrimack STARS, a non-profit organization that provides special training and rehabilitative services to physically and developmentally disabled children in her home town. “I’m very excited to be here,” Connell said. “Crotched Mountain is such a resource. I look forward to telling people about all that we offer and I am committed to enhancing the philanthropy that supports it.” Gala 2004 Set for June 12 at Crotched Mountain Donald L. Shumway, President of Crotched Mountain Foundation and Peter L. Gosline, CEO of Monadnock Community Hospital met recently with volunteer committee members from both organizations to begin planning their collaborative Gala to be held June 12, 2004, at Crotched Mountain. By popular request, the Gala will again feature the Tom LaMark Orchestra, Boston’s society band. Last year’s event raised $38,000 to support programs at both Crotched Mountain and Monadnock Community Hospital. Proceeds from this year’s Gala will be directed toward dental health programs for the constituencies of both organizations. Shumway describes the Gala as “an event that celebrates a community that is the cornerstone for support for underserved populations that include low income families and people with disabilities.” For more information call Pat Whitney at Crotched Mountain, 603 547-3311, ext. 471. Tree House Nears Completion Furniture and a few finishing touches are all that is needed and the wheelchair accessible tree house at Crotched Mountain will officially be open. People are welcome to visit the tree house any time. Groups who want to use the tree house for activities are requested to make arrangements ahead by calling 547-3311 and asking for Geoff Garfinkle. All visitors are invited to check in at Crotched Mountain’s main entrance reception desk and sign the guest book. A dedication of the tree house will be celebrated in July when donors, volunteers, students and friends will be invited for a ribbon cutting, tours of the tree house and the campus, and refreshments. Windham Center School Fifth Graders Raise $900 for the Tree House Any teacher will tell you that fifth graders have a lot of energy. And when they channel that energy into positive action, their accomplishments can be awesome. Three classes of fifth graders at Windham Center School decided during the holidays that instead of giving each other “secret elf” gifts, they would donate their gift money to charity. And because one of their classmates has autism, they decided to do something to help kids with autism. Teacher Kim Cassale went on line to find a local organization and came across Crotched Mountain and the tree house. “It was a perfect match,” she said. The 70 students raised $900 and invited Jim Orr, who led Crotched Mountain’s tree house project, to come and tell them about it. Jim brought videos and a power point presentation, but the star presenter was Chaz, a student at Crotched Mountain School who described a typical day at Crotched Mountain and answered questions about life on the Greenfield campus. At noon, Chaz joined the students for lunch and looked like the Pied Piper, as he wheeled down the corridor to the cafeteria with a swarm of students clustered around him. Crotched Mountain Golf Classic to be Held July 19 at Stonebridge Country Club The parents of Crotched Mountain School students will host a charity golf tournament on Monday, July 19 to benefit programs and services of the school. Crotched Mountain Golf Classic co-chairs Tom Gaul and David Barnes emphasize that this is a great event for a good cause. Known as one of the best courses in New Hampshire, Stonebridge Country Club was awarded a Four Star Rating by Golf Digest in its “Places to Play” ranking. Additionally, Stonebridge is one of only six clubs in New Hampshire to receive a Three-Star rating by the New England Golf Guide. Registration of $125 includes greens fees, cart, lunch and the awards reception following the event. For more information, please contact Pat Whitney at 603-547-3311, ext. 471 or at patricia.whitney@crotched mountain.org. Donors Choose New Automatic Monthly Giving Recently, two long-time donors called us to ask if there was a more efficient way to support Crotched Mountain on a recurring basis. One caller explained that he felt strongly about supporting our work. He wanted to make gifts on a regular basis and he wondered if there were some way to contribute every month for an agreed-upon amount, until further notice. Crotched Mountain is happy to provide two monthly giving plans for donors looking for an easy, efficient, no hassle way to make regular donations. The first is an automatic credit card donation that can be made monthly or quarterly. The second plan arranges an automatic electronic funds transfer (EFT) from a donor’s checking account at agreed-upon intervals. Both plans can easily be changed, upgraded or cancelled by contacting us. For more information, call Pat Whitney, Director of Development for Crotched Mountain, at 603 547-3311, ext. 471. Foster Grandparents Help Shape Young Lives Each week in 39 schools and other youth settings across five New Hampshire counties, 75 seniors serve as role models for children who need a little extra tutoring, advice and individual attention. “If I didn’t love you, I wouldn’t be here!” Irene Ameen smiles as she helps a second grader with his math worksheet. Affectionately known as “Grammy Irene,” the 80-year-old foster grandmother for Crotched Mountain’s Foster Grandparent Program has volunteered her time and love – five days a week at Gossler Park Elementary for the last nineteen years. This year she will retire from the school, but not from foster grandparenting. Now her child care center summer site will benefit from her love and attention all year round. “We could use 20 more foster grandparents in our classrooms,” according to assistant principal Nancy Smith at Highland Goffe’s Falls School in Manchester. Smith went on to praise the benefits reaped by teachers and students when a Foster Grandparent is assisting. “Mr. Nick, be careful driving home. I don’t want you to get hurt.” This from a second grader whose classroom enjoys tutoring by Nick Gianoulis in math, phonics and writing. For many of these children, foster grandparents play an important role, helping them develop the skills, confidence and strengths to succeed in school and beyond. Program director Sherry Wheeler welcomes new volunteers, “Crotched Mountain is dedicated to making life better for everyone, helping people feel comfortable with each other. We stay in touch with our seniors even when they are no longer active in the program.” For more information call Sherry Wheeler in Manchester, NH at 603 668-1990. HORIZONS is published by the Office of Advancement, Crotched Mountain Foundation. For more information, please contact: Pat Whitney, Director of Development Crotched Mountain Foundation One Verney Drive Greenfield, NH 03047 603-547-3311, ext. 471 patricia.whitney@crotchedmountain.org As a service to our readers, please write us at the above address if you wish to have your name removed from our mailing list for fundraising requests supporting Crotched Mountain. Visit www.crotchedmountain.org