HORIZONS
A Newsletter for Families and Friends of Crotched Mountain
June 2001
Vol. 1, No. 2

Community Care Expands To Serve Greater State Area
"I've been independent all my life.
But now I can't do things the way I used to.
I worried about what would happen to me now that I need help," said George M., a client of 
Crotched Mountain Community Care (CMCC).
Fortunately, George was referred to CMCC, and his worries have been alleviated.
CMCC works with families to assure that a family member is receiving the proper care from 
appropriate state, local and private agencies.
The service is vital.
As adults, we worry about our own independence, our children, especially if they have a 
disability or chronic health condition, and about our parents.
For 15 years, CMCC has concentrated its services in the Seacoast Region of New Hampshire.
In March, with the encouragement of the New Hampshire Division of Adult and Elderly Services, 
CMCC became one of several private, care-management organizations that will receive additional 
referrals from the division to assist more families who have members with disabilities and 
chronic health conditions.
"I believe this is a wonderful testimony to the superb service our care managers have provided 
for nearly 15 years," said Major Wheelock, president of Crotched Mountain.
"Our care managers have earned and deserve great respect.
They have worked with enthusiasm, diligence, commitment, and dedication to earn excellent 
reputations with their clients and service providers in the Portsmouth area," said Major.
In March, Crotched Mountain began meeting with the first of what eventually may be 240 to 300 new
consumers within the next year.
The number of care managers will be increased from nine to 15.
Prior to this decision, Crotched Mountain Community Care provided care management to 215 adults.
New offices will be established in Littleton, Claremont, Keene, and Manchester.
"The State recognizes," said Margaret (Peg) Lins, Crotched Mountain's vice president for 
Community-Based Services, "that we provide quality care management."
CMCC has developed great relationships with the consumers it serves, the companies and agencies 
that provide services, and with state agencies.
Care managers may work with as many as five agencies for any one client.
"Care management is a very demanding business.
We must be partners and advocates for the clients we serve.
That is the secret to our success.
The care management team meets regularly with service providers to review individual client and 
agency concerns," explained Sue Gustafson, director of CMCC.
"We are very pleased to have this opportunity to provide a service in which we excel-and at costs
that will ease the financial burden on state and county budgets.
We have worked hard to provide quality care management at reasonable rates," Peg pointed out.
Major Wheelock said he could not be prouder.
"We are tremendously pleased that the State of New Hampshire recognizes Crotched Mountain as a 
first-class care-management provider," said the Crotched Mountain president.

From the President
While we include in this edition of Horizons a tribute to Joe Handy, president of Crotched 
Mountain from 1977-1985, it is important to me that I additionally add what an extraordinary 
friend and colleague he was.
His continuing support and love for Crotched Mountain right up until his death was extraordinary.
I, personally, will miss him for his friendship and counsel.
All of us in New Hampshire are better for Joe Handy's many contributions.
We are indebted to him for his commitment and devotion to all of Crotched Mountain.
Legislative Testimony
Joe, I have no doubt, would be pleased and would want to be involved in the efforts we are making
to persuade the New Hampshire General Court (the State legislature) regarding adequate housing 
opportunities for people with disabilities.
The situation in New Hampshire is appalling, though New Hampshire hardly is the only state which 
has critical shortages in decent and appropriate residences for people with disabilities.
In March, we made impassioned pleas to the legislators to consider the plight of people with 
disabilities who are on waiting lists for affordable and appropriate housing.
Before I testified, three clients from our Brain Injury Program spoke in brief but articulate 
ways about the futility in their rehabilitation efforts if funding to address the "waiting list" 
remains level or is decreased.
(Indeed, Massachusetts is now struggling to find community placements for several thousand adults
with developmental disabilities following a recent court decision.)
The Supreme Court of the United States in the 1999 (Olmstead) stated loud and clear that the 
denial of community placements to individuals with disabilities is precisely the kind of 
segregation that Congress thought to eliminate with the passage of the Americans with 
Disabilities Act 11 years ago.
Penny-Wise & Pound-Foolish
An example as to why it is penny-wise and pound-foolish not to appropriately fund community-based
services is exemplified in Crotched Mountain's Brain Injury Program.
In our 30-bed unit, we currently have 19 clients from New Hampshire.
Three are still making steady progress in their rehabilitative programs, which means that 16 already have received the maximum benefit of their rehabilitation at Crotched Mountain.
They should be discharged to return to living in the community.
But these 16 sons and daughters of New Hampshire are forced to stay where they are until they are
reached on the "waiting list."
They have overstayed their need to be at Crotched Mountain ranging from one month to six years 
and seven months!
In the aggregate, these 16 have been at Crotched Mountain for 37 years and 8 months longer than 
they should have, which is an average of two years and three months of being denied reentry to 
their respective communities.
Consequently, the state is spending hundreds of thousands of dollars in Medicaid funds to keep 
them here, when a smaller investment would allow them to live in the community.
I urge New Hampshire residents to contact their legislators to end this inequity.
Major Wheelock
President

Remembering Joe Handy
When you ask people at Crotched Mountain what they remember most about Joe Handy, who died 
Feb. 17, they invariably say he was a wonderful, gentle, and caring man.
"Joe," said Major Wheelock, president of Crotched Mountain who served as a member of the Board of
Directors during Joe's tenure as president, "was a remarkable man.
We were all sad that after his heart attack in 1984 he could not continue as president to put in 
place what he envisioned, but those of us after Joe have had the good privilege to build upon 
what he envisioned."
During Joe's presidency (1977-1985), he began the effort to extend Crotched Mountain's services 
and programs in the community and to focus on the needs of adults.
For example, in 1981 Crotched Mountain's Courtyard Apartments for adults with disabilities were 
built in Manchester, NH.
Joe also oversaw the planning for renovations to the physical plant on the campus in Greenfield.
After his heart attack, though Joe could no longer serve as president, he continued to work for 
Crotched Mountain as director of special projects.
His boundless enthusiasm and energy led to the establishment of Crotched Mountain Community Care 
(CMCC) in 1986 in Portsmouth, NH, a care management service for adults with disabilities.
His vision to provide quality care management throughout the state of New Hampshire is being 
realized this year.
Joe would be thrilled.
Joe also will be remembered for encouraging Crotched Mountain to sponsor the Foster Grandparent 
Program that now has Foster Grandparents serving at 46 schools and other sites throughtout New 
Hampshire.
Together, they provide more than 77,000 hours of volunteer service each year.
Joe was tremendously proud of the Foster Grandparent Program and served as chairman for the 
Advisory Council.
And he attended all of their special events.
When he retired in 1990, his service to people with disabilities and the State of New Hampshire 
did not wane.
He served as president of the State Council on Aging, and was appointed to work on the New 
Hampshire State Committee on Aging.
He served on the New Hampshire Department of Health and Human Service Medical Advisory Committee;
the Governor's Commission on Disability and Commission in Independent Living; the Health and 
Human Services Commissioner's Long-Term Advisory Committee.
In addition to serving on the advisory council of the Crotched Mountain Foster Grandparent 
Program, he was a member of the Southern New Hampshire Elder Care Council, the Greater Manchester,
NH, Commission on Aging, the Advisory Committee to Easter Seals and Tomorrow's Choices.
And most recently Joe was instrumental in helping us to gain funding for SupportNet, our new 
telehealth and teleconferencing program.
Joe's career began in 1957 as a social worker in Vermont following graduation from St. Michael's 
College in Winooski, VT, with a bachelor of science degree in sociology and a master's degree in 
rehabilitation counseling from Boston University.
His career in social work spanned 40 years.
He never wavered from what he knew was his life's calling.
We are proud to have know and worked with Joe.

In The News
Cale Bullis Strikes Gold in World Special Olympics
Cale Bullis can bolt on snowshoes!
Cale went to Anchorage, Alaska, as a representative from New Hampshire to the 2001 Special 
Olympics World Games held March 2-4.
The athlete won four medals in snowshoe events, including the Gold Medal in the 800-meter 
individual snowshoe event in a field of 49 competitors.
He also won two silver and one bronze medals in other snowshoe competition.
Some 7,000 athletes, coaches, and spectators from 80 countries participated in the events.

Carl Cooley Selected NH Pediatrician of the Year
Dr. W. Carl Cooley, Crotched Mountain's medical director, who has earned an international 
reputation in developmental pediatrics, has been named "Pediatrician of the Year" by the New 
Hampshire Pediatric Society.
The society commended Carl for creating the Pediatric Leadership Group that brings together New 
Hampshire pediatricians who care for children with health-care needs.
He is a member of the American Academy of Pediatrics.
A distinguished researcher, author, and speaker on topics related to children with special 
health-care needs, Carl joined Crotched Mountain in 1998.
He also serves as an associate professor of pediatrics at Dartmouth Medical School.
He is a member of the Committee on Children with Disabilities of the American Academy of 
Pediatrics, and he has been appointed by four governors to many state advisory groups.
Carl is co-author of "Preventive Management of Children with Congenital Anomalies and Syndromes,"
published last year by Cambridge University Press of New York City, and Cambridge, England.
The 540-page text with an accompanying CD-ROM is packed with vital information, including details
of medical complications and preventive care guidelines that are supported by more than 500 
references.
He additionally is internationally acclaimed as an expert on Down Syndrome.

Eight second year Harvard Medical School students elected to spend their spring break learning 
about Crotched Mountain and assisting in Crotched Mountain School.
They were Melody Hou, Stephanie Misono, Yvonne Ou, Liyun Li, Ronald Chen, Rajeer Malhotra, and 
Ugwuji Maduekwe.

In tribute to April's "The Week of the Young Child," 40 students and six staff members of 
Wonderworks Learning Center made this quilt to present to the children of Crotched Mountain's 
Specialty Hospital.

Rob Garrish's 'Saying Goodbye To The Moon' was the day he proclaimed his disabilities 'A Gift'
Would Rob Garrish walk again if he had the opportunity?
Of course.
Would he like to speak as well as he did 15 years ago?
You bet.
But make no mistake when you hear Rob say that he believes his disabilities have been "gifts."
Yes, gifts!
He's adamant about that.
Rob was 19, a sophomore biology major at the University of New Hampshire, when he had his first 
hemorrhage.
He was an excellent student.
A research assistant in biology.
He loved computers, playing baseball, soccer, hockey, downhill and cross-country skiing, and 
tennis, among others.
And he was looking forward to going on to graduate school at the University of Connecticut.
Biology Professor Tom Lee had Rob as a student.
"After Rob had his first episode, I never thought he would be able to catch up.
Not only did he catch up, he earned an A in the course.
Remarkable" exclaimed Tom.
To this day, Tom and Rob remain good friends, and socialize together.
"We're passionate Patriot fans," said Tom.
"Rob is well rounded and has a broad perspective on all types of topics-current events, 
philosophy, movies, and he loves to read," said Tom.
"He's wonderful, and we both are looking forward to seeing the newest version of the movie 
"Return of the Mummies," he laughed.
"He's really a good friend of our family and used to baby-sit our children."
The cause of Rob's hemorrhages is still unknown.
He has had 12 in nine years, but has not had one in 10 years.
He has endured years of tests, examinations, and some operations.
His speech and ability to walk have been affected, and Rob began using a wheelchair in 1990.
The native of Hampton, NH might have allowed himself to take a dour attitude toward life.
Instead, he has elected to have a zest for life and enthusiasm for taking on a variety of 
projects.
He invented a board game, tutors kids of health-care workers, works on a web site 
(www.accessingequality.com), lifts weights, is an expert chess player, a gardener, and reads for 
pleasure as well as in his discipline of plant biology and complex ecological systems.
Rob also is hopeful of finding a publisher for the book he is writing titled Saying Goodbye to 
the Moon, which is not as much about his life as it is about his philosophy that his disabilities 
truly have been "a gift."
He explained the title:
"Saying Goodbye to the Moon is a good metaphor for my life.
I became disabled at age 25.
This meant that I had to say goodbye to an old way of living and a great lifestyle.
In my book, I am trying to show that life is what you make it.
I want to use my life as an example to show the powers that we possess.
What matters is freedom of choice.
I choose to live without bitterness and regrets."
"The title," said Rob, "also comes from a hypothesis in astronomy which suggests that the moon's 
orbit is unstable.
Some estimate that in approximately 50,000 years the moon's orbit will alter, and the moon will 
slip away into deeper space, and, thus, we'll say so long to something we've known all our lives.
And Rob wants to do more, especially to be more involved in issues affecting people with 
disabilities.
He serves as president (second time) of Betty's Dream in Portsmouth, NH, which has 24 apartments 
and is owned by people with disabilities through a nonprofit foundation.
Crotched Mountain care managers assist 17 consumers (Rob is one) in Betty's Dream.
Among the changes Rob would promote is to have Medicaid include the opportunity to replace 
worn-out wheelchairs and other necessary equipment.
"I also contend that it is important that the Medicaid committee have members who are people with
disabilities.
I've been writing letters to legislators and federal government authorities to make the point.
I will be unrelenting until that structure is changed."
I Rob always upbeat?
Not at all.
He sometimes feels confined-not to his wheelchair or apartment-but because he is financially 
limited.
"That's not easy and can be depressing," said Rob.
"Living a life with disabilities is not a walk in the park," he points out.
"In society, there are physical, psychological, and sociological barriers that people with 
disabilities must overcome.
It's tough."
"Physical barriers are most prevalent in society, but, with some exceptions, they are the easiest
to overcome.
My ability to function at 100 percent of my capacity is directly proportional to the state of my 
environment.
This is true for most individuals in a wheelchair, which is one of many reasons the ADA 
(Americans with Disabilities Act) is so vital.
My ability to participate in activities-from writing and reading to going out to a restaurant 
and a show-are dependent on the degree to which the activity and the means of getting there are 
user-friendly."
"The degree to which psychological barriers are a problem depends on one's flexibility and self 
concept.
A situation can be quite offensive when someone who should know better, such as a physician, 
will hear my speech difficulty, then choose to look and talk with the person with me about my 
problem rather than direct his or her attention to me.
Self concept is very important."
Rob said another key to his enthusiasm is learning how to use the extraordinary amount of free 
time he has.
"Taking advantage of all of this excess time, as well as seeing all of the aspects of one's 
disability, is critical to viewing the disability as a gift.
It also gives me time to write poetry, which he has included in his book.
"Rob," said Aldene Saucier, his Crotched Mountian case manager, "is one of those wonderful people
who has a strong, positive outlook on life.
He is so caring and has so much insight and empathy for others. 
I'm so very proud to be a part of his life as his care manager.
He's really had a lot of adversity, but you'd never hear that from him.
He's a role model as well as an inspiration to all of us."

The Joy of Caring
Ruth Dinse Jones led a full and joyful life.
In her career she was employed for more than 34 years by Combustion Engineering, Inc., of New 
York City and Stamford, Conn.
She rose to the position of assistant secretary of the company, the first female officer in its 
62-year history.
Outside of work, her main interest was music.
She played the piano, sang and directed an a capella quartet for fourteen years.
She also gave of her time to others.
She was an active volunteer with the Red Cross, food programs for the poor and her local hospital.
Ruth is survived by four step-children, 12 grandchildren and 15 great-grandchildren.
Ruth will also be remembered at Crotched Mountain for a long time.
She made a generous bequest to us and several other charities that she had loyally supported 
during her lifetime.
Her stepson told us of the great pleasure he received in carrying out all of her generous wishes.
So, in effect, Ruth will also be survived by the 120 children attending the Crotched Mountain 
School and the other children and adults with disabilities we help every day.
It's so easy to include a favored charity in your estate plans.
We have several brochures that you might find interesting.
Please call or write to us if you would like to receive one or more of the following helpful 
pamphlets:
21 Ways to Make a Difference
What to Do Before Drafting or Reviewing Your Will
Estate Planning Strategies That Meet Your Needs
To obtain a copy of these brochures, or if we can be of any assistance to you as you make your 
estate plans, please call or write to:
Michael Redmond
Vice President for Advancement
Crotched Mountain Foundation
One Verney Drive
Greenfield, NH 03047
603-547-3311, ext 404
michael.redmond@crotchedmountain.org

Appraisal Day Raises $5,500
In the style of public television's "Antiques Road Show," Crotched Mountain Community Care 
sponsored an Antique Appraisal Day and Benefit Auction on March 24 in Portsmouth, NH.
More than $5,500 was raised.
Proceeds will be used to purchase items for Community Care consumers who have limited resources.
Held at Portsmouth High School, some 200 people brought items to be appraised by a team of 
antique experts who donated their time to the event.
They were Doug Cooper of Stratham, NH; Hank Ford, Drummer Boy Antiques, Bedford, NH; Caroline 
French, Caroline French Antiques, Dover, NH; and Daniel Olmstead, Daniel Olmstead Antiques & 
Auctions, Greenland, NH.
Harvey Webber of H.G. Webber Antiques of Hampton, NH, presided over the benefit auction.
The corporate sponsor was Fleet Bank.
Also providing support were Merriam Graves Medical Products, Benda Healthcare, Inc., Personal 
Touch, Health Force, and Interim Healthcare.
Committee co-chairs were Rutch Dunfey of Rye and Roger Ball of Newcastle, both members of the 
Crotched Mountain Foundation Board of Trustrees.
"We were quite pleased with this first Appraisal Day," said Connie Todd, manager of special 
events.
"We are excited about making the day an annual event."
Next year's Appraisal Day will be April 13.

Fred Carelli believes in chance
By chance, Fred Carelli was brain injured in an industrial-related accident two-and-a-half years 
ago.
Then last fall, by chance, Fred attended a breakfast for legislators at Crotched Mountain that 
focused on brain injury legislation.
Fred had never been to Crotched Mountain, but he was impressed with what he saw going on here.
Since that fall morning, Fred, who lives in Manchester, NH, has been an enthusiastic volunteer 
working with brain injury patients.
He is a man of many talents.
He has created, exhibited, sold, and taught pottery making.
He has been a guitarist, composer, and singer.
He is a water-colorist.
And he has had varying interest in water sports, including scuba diving, surfing, and sailing;
and he was a model for a photo shoot in Indonesia.
Fred taught at a Hawaiian surf school
And he was an engineer on Navatec II, a modern experimental boat featured in the opening of the 
movie "Water World.
Following his visit to Crotched Mountain, Fred proposed that he become a volunteer, particularly 
to work in the Brain Injury Program.
Weekly, since last fall, he has demonstrated and assisted clients in producing some wonderful 
pieces of art.
The residents have been thrilled and proud.
Their work has been in a public display case.
Fred's medium is Raku pottery, and ancient Japanese form of clay firing in which the pieces are 
fired in two stages, and then cooled in water.
On two occasions, Fred brought and set up his 70-pound kiln in the courtyard.
"Fred has wonderful empathy in working with the clients," pointed out Mary Griffin, program 
manager for the Brain Injury Program.
"The fact that he is a brain injury survivor provides significant perspective to our clients as 
well as to all of us who are staff members."
"As a brain injury survivor," said Fred, "it is a marvelous experience for me to work with the 
clients at Crotched Mountain.
It really is a thrill for me.
When I received my injury, I wasn't sure if I ever would be able to throw pottery again.
Well, here I am, and I could not be happier to help in any way I can.
It's very gratifying for me to see how happy it makes each person to be creating something very 
special.
And it is something very special for me.
I think the staff have enjoyed it, too."
Fred is one of more than 30 men and women volunteers who come to Crotched Mountain each week to 
provide assistance,
Such as working in the media center, helping teachers in the classroom, reading to clients, 
mentoring students, data entry, filing, and helping in special service areas.
"We're always looking for more volunteers to lend us their expertise, time, or interest.
Volunteering is a special way to make tremendous contributions and differences in people's lives 
and in return receive tremendous gratification and appreciation," said Laura Keith Woerner, 
manager of volunteer services.
For more information about being a volunteer, call 603-547-3311, ext 410.

10 Year Old Finds a Worthy Cause
Crotched Mountain relies on the support of many good people from New Hampshire and surrounding 
states to carry out our mission.
We are grateful for each and every donation we receive, large and small.
Every so often, when we open an envelope containing a gift, we are so moved by the letter, we 
stop what we're doing and share it with everyone in the Foundation office because it inspires us 
so much and affirms the importance of Crotched Mountain to families.
Recently, we received such a letter.
We share it with you along with a story about a very special young person, who shares with you a 
concern about children with disabilities.
Dear Crotched Mountain,
My name is Lauren,
I am 10 years old and in the 5th grade.
In the past year or so, I have raised money to install a play panel in a public playground that 
is accessible for handicapped children.
A play panel is a piece of plastic on which is mounted a game, or something similar.
I had finished raising the money and I had paid for the panel.
I still had money remaining.
When I started the project, I knew that if I had remaining money I wanted to donate it to a 
nonprofit organization for handicapped children.
I did some research, and I came up with Crotched Mountain.
Enclosed you will find a donation of $148.27.
Lauren
Lauren lives in Massachusetts with her mom and dad and brother and a sister.
Last fall, Lauren decided a playground near her home could use a play panel.
She enterprisingly prepared a letter that she sent to area businesses proposing they support her 
project for the play panel.
Did they ever!
In all, she raised $1,200.
Final cost of the project was $1,1051.73.
With $148.27 left over, Lauren was not sure what to do with the money.
Her father, Alan, said he knew of a good place in New Hampshire that he had heard about when he 
lived in the state.
The checked out our web site.
"I liked what I saw there," said Lauren, "so I sent in the money."
When she's not fund raising, Lauren plays soccer and softball, and she takes dance, flute, and 
piano lessons.
Major Wheelock, president of Crotched Mountain, in his letter to Lauren said, "I can only begin 
to tell you how grateful I was to receive your letter and your contribution.
We just finished building an accessible playground for the children who attend our Crotched 
Mountain School, many of whom have physical disabilities.
I have seen how thrilled they are to be able to play like other children, so I am certain that 
your project has brought great joy to children where you live.
We think it's terrific that you took the time to help others.
You should be very proud of your accomplishments.
We hope you will come to Crotched Mountain to visit so that we may give you a tour.
"Thank you for thinking of us."
Crotched Mountain may be found on line at www.crotchedmountain.org

HORIZONS
is produced three times yearly by the Office of Communications.
For more information, contact:
Crotched Mountain
1 Verney Drive,
Greenfield, NH 03047
603-547-3311